As we Lewys keep fighting and staying on our path to fight Lewy, reading updated symptom lists checking to see if it has been updated (highly unlikely) or if there is a drug interaction that may be causing the symptoms. This time mine were related to a short procedure and the use of numbing jelly. … Continue reading Travels with Lewy – New Unkown Symptoms
As we Lewies try to live our lives, altered as they are from our previous living style, we still have things to offer, some have more than others but most of us can do something for a long time after diagnosis, unless WE give up. We may not be able to do what we used … Continue reading Travels with Lewy: I Haven’t Lost Yet.
This past Monday, I was the guest on the Podcast, A Lewy Roller Coaster. https://www.buzzsprout.com/1298360/7505536 This was quite entertaining and productive. Please give a listen as Curry Wisenhunt and myself exchanged points of view while Linda Ashcom Szypula offers the caregivers perspective. Curry and Linda have the page, Our Journey with Lewy Body Dementia. Please … Continue reading Podcast – Staying Positive even with Lewy and Parkinsonism!
When you start on the Lewy Path, you need ways and guides to help you on the journey. I have a 3 links that I use at least once every few days to guide me and let me know that I am not alone. The first link tells about the finding and getting a diagnosis. … Continue reading Travels with Lewy – Information packs
Good Day to all. Today I saw the documentary; Spark. Spark is a roundtable discussion of neurologists, neuroscientists, psychiatrists, and Robin Williams wife, Susan. During the segment all participated some, while Susan participated the most. In the beginning, we here of the Williams’ trek to just get a diagnosis. It took 10 months. They were … Continue reading Travels with Lewy: Review of Spark: A Robin Williams Story.
Sleep, I have read in different groups that it is, at times, hard to come by. I have always been able to fall asleep and get a good night’s rest until recently. In the beginning of my travels, my neurologist asked if I had bad dreams or trouble staying asleep. I did have trouble getting … Continue reading Travels With Lewy: Hypnos, where art thou.
As some or most of you may know, Lewy isn’t alone in doling out the torture. His good friend Parkinson is with him. When Lewy needs a break, he usually calls Parkinson to fill in for him. It just wouldn’t be like Lewy to leave us alone for a few days. I know, for me, … Continue reading Travels with Lewy Parkinson; Party of 1
For a large majority of society, tonight will be filled with merriment, noisemakers, fireworks, and so forth. For those of us with Lewy, this is just another day. We laugh, usually at something no one else can see or hear. We set off noisemakers, usually after we get a child to pull our finger. And … Continue reading Have a Lewy New Year
Travels with Lewy is Brian Dougherty’s account of his life with Lewy Body Dementia.